CrySP Speaker Series on Privacy

This speaker series is made possible by an anonymous charitable donation in memory of cypherpunks and privacy advocates Len Sassaman, Hugh Daniel, Hal Finney, and Caspar Bowden.

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A human-centered tool for enhancing patient privacy in electronic medical record systems

Kelly Caine, Clemson University

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October 21, 2013 4:00pm, in DC 2568


Health information technology has the potential to be a driving force in revolutionizing the healthcare system. However, concern for privacy has been cited as a major barrier in the design, implementation, and acceptance of health information systems such as electronic medical record systems. In this talk, I will describe human-centered research aimed at designing and building a privacy-enhanced electronic medical record system that puts patients in control of the privacy of their electronically stored health information. Throughout the talk I will situate our work within the broader field of human factors research related to designing privacy enhanced health technologies, highlighting work on understanding peoples’ privacy attitudes and behaviors related to the introduction of technologies in the health system. I will focus on describing user studies with patients that led to design requirements and describe the iterative design process we employed. I will conclude by presenting the user interface solutions we have discovered for building privacy enhance electronic medical records, and describe our plans for implementing it within a health system in the US.


Kelly Caine is assistant professor in the Human-Centered Computing Division of the School of Computing at Clemson University. She speaks and writes on the role of psychology in computing, human factors, privacy, health informatics, human computer interaction, empirical methods and designing for special populations. Her recent work has focused on designing, building and studying privacy-enhanced health technologies. She has been awarded grants agencies including the National Science Foundation to conduct research on privacy-enhanced health technologies, and has written extensively on human factors issues related to designing privacy-enhanced systems. She has a B.A. from the University of South Carolina and a M.S. and Ph.D. from the Georgia Institute of Technology.